Tag: Cystic Fibrosis Foundation

ECONOGAL > Cystic Fibrosis Foundation

Endurance

Posted on by Econogal

Endurance is defined as the ability to withstand hardship or adversity according to Merriam-Webster. The first use of this word traces back to the 15th Century. My belief is the usage at that time revolved around the hardship of living from day-to-day.

At present the word is used as both a noun and an adjective. In some parts of the world endurance references day-to-day survival just as in the 15th Century. However, endurance also connotes the ability to perform certain types of athletic feats. Examples would be marathons (or ultramarathons), triathlons (Iron Man), and mountain climbing (Think Mt. Everest).

Fund Raising

Tests of endurance have become a part of fundraising for various causes. In 2010, I participated in the Marine Corps Marathon (MCM). To gain an entry spot my running partner and I needed to run a qualifying race at Quantico. Since the MCM is affiliated with a government entity, the organization itself does not raise fund for a charity. However, runners are allowed to raise funds in support of an organization of their choice. We raised money for the scholarship fund at our local community college.

Another test of endurance is the Tough Mudder. Not long after the MCM, I witnessed rather than participated in this obstacle course. Crawling through the mud and crossing streams via rope netting were doable but I balked at the idea of running through dangling wires, some with electrical currents. However, I supported my colleagues with my presence and my donation. The team raised funds for The Wounded Warrior Project.

Soon I will participate in an Xtreme Hike to raise money for Cystic Fibrosis. This test of endurance will include hiking 20 miles up and down Vail Mountain in Colorado with an altitude change of 3250 feet. Any sane person will ask, why not just donate? Why push the limits? Endurance is the answer.

Cystic Fibrosis

For the individuals I personally know with Cystic Fibrosis, endurance is needed for day-to-day living. The disease affects the lungs and the pancreas. It is an inherited disease. Thus someone is born with it. At this point in time there is no cure. But research scientists are working hard to develop better treatments as well as to find a cure.

Current treatments include pancreatic enzymes such as Creon taken with each meal and snack, bronchodilators and airway clearance vest machines. (Hopefully insurance companies now cover the airway clearance vests. I fought an insurance company for two years over the necessity of this expensive machine.)These are everyday treatments.

Anytime a CF patient becomes ill, treatments intensify. Courses of antibiotics and additional bronchodilators are added to the daily regimen. More time is spent on airway clearance. Sometimes the airway clearance is measured in hours. Thus, endurance becomes second nature to the patient. And the caregiver.

Endurance

The CF patient raised in my home is now an adult living half a country away. I no longer have the day-to-day responsibility of a caregiver. But endurance is an ingrained fiber of my being. Therefore, I plan to participate in both the fundraising and the hiking. If my offspring can endure in the face of adversity so can I. But sometimes I need to prove this to myself.

Participating in Xtreme Hike Vail is one way to reaffirm my commitment. The physical duress will pale in comparison to the hardship faced by those afflicted with this disease. There is no way to mimic their challenges. But empathy is an important part of human nature. I think the stresses on the lungs of physical activity at ten thousand feet above sea level will simulate the challenge breathing holds for those with Cystic Fibrosis. Just breathing. Something to think about.

So I am adding a link to the hike on the sidebar or you can click here to donate. Those of you who personally know me can find my team. Just scroll down to the Top Teams Box and click on “more.” For everyone else, pick a team, any team. The cause is what is so important. Please consider donating to this worthy cause. Individuals with Cystic Fibrosis are the epitome of endurance.

August 2018 Wrap Up

Posted on by Econogal

I usually find August unbearable. Hot winds out of the Southwest make life miserable. Much of the time my garden shuts down because it can’t handle the windy triple digit days. This year was different. Cool, rainy days prevailed during the early weeks with just a couple of hundred degree days toward the end. ‘I could get used to this’ to paraphrase an alien busting actor.

Travel

In fact, weather in my hometown rivaled Saratoga Springs during the early part of the month, although we lack any farmers market. Other travel trips were limited to just a few hours. But one I will share took place in the Rocky Mountains. I joined a young couple in hiking around Golden Gate Canyon State Park. We will participate in the Xtreme Hike Vail in late September. This is a fundraiser for the Cystic Fibrosis Foundation. Feel free to contact me through the mail button at the top if you wish to donate.

View of mountains in distance
Looking West from atop Golden Gate Canyon State Park
two people hiking on a trail
Hiking Mule Deer Trail

High altitude certainly slows me down. On this particular hike, each mile took about twenty minutes. The three hours of “moderate” trail left me feeling confident that I am up to the challenge. I did ice my ankles and stretched afterwards. Both actions keep me on top of my game. Read my post recommending the book Stretching if you don’t already have a routine.

County Fair

August heralds the county fairs in this part of the country. I entered quite a bit of produce and some canned goods this year. Although I did not win a top prize, I was proud of my garden efforts. The Raised Row Garden certainly is a success. My plan is to continue this technique another two years before placing permanent fencing around the perimeter. So far the temporary fence is keeping the critters at bay.

4-H Competition Premiums

A comment on the fair. There were over eighty kids in the parade of champions. This is a good number. However, I believe most were competing in the livestock divisions. The other divisions were not well represented.

For example, only four articles of clothing were entered by three separate 4-H kids. This was disappointing to me. With the exception of cake decorating, the entries in the non-livestock division were sparse. I don’t think most of the kids showing animals will use the skills as adults. Much of the competition centered on lambs and goats. Outside of the Easter season, few in this country eat lamb on a regular basis.

But I do see this as a principle of economics. The premiums for animals participating in the livestock division are determined via auction. The townspeople bid on the animals (but don’t actually purchase them) and the kids keep this premium. The bids are usually in the hundreds or thousands of dollars. The kids can then sell the animals at market price if they wish. This doubles the money.

However, the 4-H entries in subjects ranging from dog obedience to cooking to rocketry to woodworking (the list of skills is extensive) earn premiums paltry in comparison. The Grand Champions of each division are awarded seventy-five dollars. If you were a kid, which activity would you spend your time on?

Econogal Challenge

In July I challenged my readers to abstain from alcohol, or if they did not drink form their own challenge. An article and scientific research indicating a rise of liver disease among Millennials prompted this challenge. The feedback is positive. Those involved feel free to share in the comment section below. Or in the comment section of the original article Linking Liver Disease to Socioeconomic Events. One month down, two to go!

National News

The investigation into the involvement of Russian election interference continues to twist and turn. I urge my readers to read my reviews of both New York Station and Hidden Target. History reveals such interference is not new. However, current technology has taken everything to the next level. I have talked about technology before. I am currently working on a post concerning cyber security. There are some things one can do to limit the invasion of privacy. However, only going totally off-grid eliminates breeches to personal data. My preference is to protect what I can with the knowledge that everything is vulnerable.

This past week, Senator John McCain lost his battle with cancer. I did not personally know Senator McCain and did not always agree with him on political matters, but I admired his devotion to this country. Over the next few days, media coverage will focus on the ceremonies recognizing this statesman. Honoring those who give much to society is important.

Even more important is each of us doing our part to make society better.